Different types of childhood ILD vary in severity and long-term outcomes. In simplest terms, childhood-onset ILD decreases the young person’s ability to supply oxygen to their body. Early diagnosis and treatment are important to successful disease management and quality of life.

Joining our patient network group is a valuable opportunity to contribute to groundbreaking research chILD. By becoming a member, you can help advance our understanding of this rare condition, support the development of new treatments, and connect with other families and individuals affected by childhood-onset ILD.

Sign up through our online forms to make a difference and be part of a community that fosters hope and progress in childhood ILD research. We do this ethically and pragmatically, knowing that there are many individual experiences and challenges to participating in Patient and Public Involvement (PPI). By connecting our group with ILD clinicians and researchers, we can directly impact and influence research and positive change. Your participation can provide researchers with essential insights and data to improve patient outcomes and enhance the quality of life for those impacted by this disease.