Privacy Policy

Who We Are

We are ChILD UK, a voluntary patient organisation dedicated to [briefly describe your mission supporting children with interstitial lung disease. Our website address is https://www.childild.org.

Purpose of This Policy

This policy outlines how we collect, use, store, and protect personal data in compliance with the UK General Data Protection Regulation (UK GDPR) and the Children’s Code.

Data We Collect

We may collect and process the following personal data:

  • Personal Identification Information: Name, age, and health condition of the child; parent’s or guardian’s name and email address.
  • Technical Data: IP address and browser user agent string to help with spam detection.

How We Collect Data

  • Direct Interactions: Through consent forms and contact forms on our website.
  • Automated Technologies: As you interact with our website, we may automatically collect technical data about your equipment, browsing actions, and patterns.

How We Use Your Data

We use the collected data to:

  • Process and manage consent forms.
  • Respond to inquiries or requests submitted via our contact forms.
  • Improve our website and services through analysis of user interactions.

Legal Basis for Processing

Our legal bases for processing personal data include:

  • Consent: Obtained from parents or guardians for processing children’s data.
  • Legitimate Interests: To analyse and improve our services.

Data Sharing

We do not share personal data with third parties unless required by law or with explicit consent.

Data Security

We implement appropriate security measures to prevent unauthorised access, alteration, disclosure, or destruction of your personal data.

Data Retention

We retain personal data only for as long as necessary to fulfill the purposes we collected it for, including satisfying any legal, accounting, or reporting requirements.

Your Data Protection Rights

Under data protection laws, you have rights including:

  • Access: Request copies of your personal data.
  • Rectification: Request correction of inaccurate or incomplete data.
  • Erasure: Request deletion of your personal data under certain conditions.
  • Restriction: Request restriction of processing under certain conditions.
  • Objection: Object to processing under certain conditions.
  • Data Portability: Request transfer of your data to another organisation or to you under certain conditions.

To exercise any of these rights, please contact us at connect@childild.org.

Children’s Privacy

We prioritise the protection of children’s data. Parental consent is required for processing personal data of children under the age of 16. Our services are designed in compliance with the Children’s Code to ensure the best interests of child users.

International Data Transfers

We do not transfer your personal data outside the UK or European Economic Area (EEA).

Changes to This Policy

We may update this privacy policy from time to time. Any changes will be posted on this page with an updated revision date.

Contact Us

If you have any questions or concerns about this privacy policy or our data practices, please contact us at:

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